February 28 is the World Day of rare diseases and the Federación Española de Enfermedades Raras (FEDER) celebrates it with an awareness Campaign for their research.
Under motto “La Investigación es nuestra esperanza” (Research is our Hope). The FEDER’s campaign for this Rare Disease Day aims to raise awareness of rare pathologies and promote their research.
In accordance to the FEDER, a Rare Disease can affect anyone’s. 7 of each 100 people suffer one of them. In Spain there are three million patients that endure rare diseases.
Due to the case of one of our colleagues, at the Hotel Barcelona Princess we got to know first-hand the X-linked adrenoleukodystrophy, a rare disease that affects mainly children between 4 and 10 years.